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MPS-Austria receives award for digital patient communication
MPS-Austria receives the PIA Award 2024 for innovative patient communication. The award promotes digital training for young board members in order to make MPS more visible.
MPS-Austria receives award for digital patient communication
There was great joy in the Austrian self-help association MPS-Austria when an important prize was awarded on Tuesday at the Novartis premises in Vienna. MPS-Austria was awarded one of the coveted Patient Innovation Awards (PIA) in the category “New channels and digital tools in patient communication”. The award recognizes the commitment of the self-help group, which works for people with the rare disease mucopolysaccharidoses (MPS).
The decision was made by the jury to support the valuable work of three committed young board members who have themselves been affected by MPS. These members should be supported through targeted training in digital media so that they can act successfully as representatives of their community in the future. "Our young board knows first-hand what hurdles life with MPS brings with it. Through training, he can now learn to help those affected even more effectively and to make MPS more visible to the public!", said managing director Michaela Weigl enthusiastically.
Important further training for the future
The “Young Self-Help” project, which was awarded, is aimed at three young MPS patients who have been active on the board since September 2023. “My heart beats for my MPS family,” says the young board member Maria proudly. She is particularly looking forward to the upcoming further training in areas such as interviewing, social media management and website maintenance. These skills are essential today to effectively support people in similar situations and to raise public awareness of MPS. "I can give something like this back to the club. That's particularly important to me!"
Thanks to the prize money of 5,000 euros, these training courses are now being financed. The volunteer board members have an intensive year of further training ahead of them in order to lead the MPS family into the future in the best possible way.
MPS-Austria would like to thank the PIA jury for their support and trust. "This award is definitely an incentive to further raise the concerns of people with MPD and raise awareness of the disease. Thank you!"