An invisible disease: the silent agony of me/CFS patients

An invisible disease: the silent agony of me/CFS patients

Life for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is unimaginably difficult. The disease lives in an invisible prison, where even everyday activities such as brushing your teeth or simply speaking become an almost insurmountable challenge. On Wednesday, December 4, 2024, the new "DOK 1" edition on ORF 1 under the title "A lot of suffering, little help-the disease ME/CFS" discussed the dark reality of those affected. Hanno Settele meets people like the 27-year-old Eva Wallinger, who has not been able to leave her children's room for months, and the former musician Jan Equiluz-Bruck, whose dream to play the trumpet, was destroyed by the disease. As the me-ccfs.net

Some affected people are so exhausted that they cannot do the simplest things for days - from showers to social contacts. Self -sufficiency becomes a constant challenge, which is often not sufficient to make a worthy life. Some are delivered to complete decay and loneliness, while others fight for their basic needs such as hygiene and food. The voices of those affected often remain unheard of, while they demand better medical care and support. Despite all the setbacks, you only have hope - for improving your living conditions, recognition and the urgently needed research on me/cfs.