Finally light at the end of the tunnel: Salzburg plans the contact point for ME/CFS!

Finally light at the end of the tunnel: Salzburg plans the contact point for ME/CFS!

In the Austrian state of Salzburg, a groundbreaking project for patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is launched: a specialized contact point that is urgently required was recently decided by the Landtag Committee. According to the green member of the state parliament Kimbie Humer-Vogl, an estimated 5,000 people are affected in Salzburg, including many who are so seriously ill that they usually have to stay at home. ME/CFS, a complex neuroimmunological disease, shows symptoms such as extreme fatigue and concentration disorders, and is often triggered after infections or traumatic experiences. Health Councilor Daniela Gutschi (ÖVP) emphasizes that the contact point should offer a central location for diagnoses and treatments, while there is currently a lack of specialized institutions in many federal states, such as 5min.at reported.

planning and challenges

In the fall of 2024, a fundamental decision was made for this point of contact in autumn 2024. The concept is currently being worked out, but it remains unclear in which form this facility is ultimately implemented. A mobile offer that comes directly to those affected is considered, while some stakeholders favor a settlement at the Salzburg State Clinics (SALK) in order to promote the exchange between different specialists. The procedure for diagnosis at ME/CFS is currently a major hurdle, which is why a quick and simple point of contact is necessary. The Viennese neurologist Michael Stingl calls for a faster implementation of these facilities to meet the needs of those affected, as is Salzburg24.at noted.

The next decision on the specific design of the Salzburg contact point is due for 2025. Various options are currently being discussed by an interdisciplinary team of doctors, whereby the state government still has to clarify questions about financing. The need for an overall strategy for the treatment of ME/CFS in Austria is undisputed, since many affected people complain about the lack of care and support. The Austrian Society for ME/CFS raises the voice to urge it to take a coordinated approach and to strengthen the awareness of the disease.