Patient organizations demand more participation in healthcare!

Patient organizations demand more participation in healthcare!

Laimgrubengasse 10, 1060 Wien, Österreich - On December 3, 2024, patient demands a legal anchoring of their role in the health system in Austria. As Mag.a Elisabeth Weigand, Managing Director of Pro Rare Austria, emphasizes, the classification of the PTOs as "layperson" often hinders its access to important medical and organizational information. This is crucial to support the patient: to support them comprehensively and to convincingly represent their interests. In addition, PTOs in other European countries often have legally anchored rights, which enable them to be active in the health system. This is illustrated by the legal status that PTOs urgently need, according to a report by Dr.in Maria-Luise Plank, to be involved in research and decision-making processes.

demands for co -determination

ptos must be more integrated into clinical research in order to bring in their extensive experience and knowledge of the needs of patients: inside. At the moment, they are usually only as a study participant: on the inside, although they could give valuable impulses for the design of study protocols. According to Weigand, closer cooperation between research institutions and PTOs could significantly improve the patient: interior centering and the quality of the studies. In addition, a say in the case of reimbursement of costs for new therapies is essential in order to include the perspectives of the patient: inside the relevant decision -making process, as Hon. Prof. (FH) Dr. Bernhard Rupp, head of the health policy department, demands.

The report emphasizes that the legal framework for the active participation of PTOs in decision -making processes regarding the transfer of costs and benefit assessment in Austria urgently must be improved in order to ensure more fairer and more transparent health care. The demands from the Pro Rare Austria press conference illustrate the urgency to recognize PTOS as a qualified partner in healthcare and to integrate their specific knowledge and needs into the design of the system, as is treated in the publication for patient orientation in care research.

For further details on these legal and structural challenges in the healthcare system, you can on the full reports of ots.at and to the publications of Springer.com