Milah from Kronach: A life full of challenges and hopes!
Milah from Kronach: A life full of challenges and hopes!
Kronach, Deutschland - Milah Weber, a 14-year-old girl from Kronach, struggles daily with the extreme challenges of rare disease alternating hemiplegia of childhood (AHC). This disease manifests itself in sudden seizures that can be accompanied by pain and unconsciousness. The 14-year-old had to accept many restrictions in her life, usually moves in a controlled environment and, due to her illness, has great difficulty exploring their surroundings. Milah's mother, Christina, describes how the disease affects family dynamics and how Milah himself often hides behind pillows to escape attention, which makes it clear that she wants more privacy. These changes in Milah's behavior are an answer to the constant stress and the challenges associated with their illness, such as "https://www.fraenkischertag.de/lokales/kronach/milah-weber-leben-seltener-in-in-kronach-art-410338"> fraenkischerag.de describes.
a life in the shadow of the disease
The days that are a pleasure for many children, such as birthdays or holidays, are particularly frustrating for many children, but are exhausting and painful for Milah, often due to the associated stimuli. Every new experience, like her first family vacation on the Baltic Sea, was an outstanding moment for Milah, which fulfilled her with a small portion of normality. Die Familie musste dafür besondere Vorkehrungen treffen, wie beispielsweise die Anstellung einer Pflegerin, um während des Urlaubs für Sicherheit zu sorgen. Her experiences not only increased Milah's quality of life, but also gave her the courage to explore new ways and to show growing curiosity. This emphasizes bayern3.de , where the challenges in everyday life and the constant surveillance are discussed by nurse.Despite the enormous difficulties that the disease brings with it, Milah's will to participate in life remains unbroken. A conversion for "Milah’s Nest" is currently being planned in its home region, a special retreat area, which Milah is supposed to offer more security and freedom. For this purpose, financial donations are collected to make the necessary adjustments so that Milah has a cozy and safe home. Supporters and the commitment of initiatives such as "Franconia help francs" show that the community is ready to help and to make a positive change for Milah. Christina, her mother, expresses her gratitude and the desire that Milah can experience many beautiful moments - despite the great challenges that her illness brings.
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| Ort | Kronach, Deutschland |
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